Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation is a leading health care nonprofit and driving force in the search for a cure for cystic fibrosis. Guided by a multi-year strategy and deep partnership with the CF community, we are focused on meeting today’s urgent challenges and advancing tomorrow’s scientific breakthroughs while shaping the systems, policies, and practices that influence care, access, and innovation for people with CF. The Foundation has a strong track record of impact. Nearly every CF therapy available today was made possible with our support. CF was once considered a childhood disease with limited survival into adulthood. Today, adults with the disease are living longer, fuller lives. But there is no cure for CF — and although treatments available today can significantly improve health, many continue to experience complications and infections. That’s why we are driven by a deep sense of urgency and commitment to innovation, from research and care to advocacy and support. At the Cystic Fibrosis Foundation, we believe every person with CF deserves the opportunity to lead a long, fulfilling life. That’s why we’re committed to advancing health experiences and outcomes for all people with the disease. CF can affect people from every racial and ethnic background, and no two journeys with CF are the same — each is shaped by a blend of identity, health, life circumstances, where someone lives, and more. Headquartered in Bethesda, Maryland, the Foundation also operates a research lab in Lexington, MA and dozens of chapters around the country. The Foundation offers in-person and remote roles and is committed to fostering a mission-driven workplace environment that attracts and supports talented individuals from all backgrounds. We are a donor-supported nonprofit, an accredited charity of the Better Business Bureau's Wise Giving Alliance, and a recipient of Candid’s Platinum Seal of Transparency.www.cff.org
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Search complete. 27 mentions across 18 episodes found for "Cystic Fibrosis Foundation".
Nov 3, 2026
Gordon KeithHOST
All right, and so how can people get tickets and information on this, Rhett?
Rhett MillerGUEST
Breathe Easy Concert Series, Cystic Fibrosis Foundation in North Texas.
Rhett MillerGUEST
I don't know.
Rhett MillerGUEST
Google it.
Jim RobertsGUEST
And some events are much bigger than others.
Jim RobertsGUEST
On Saturday night, we're doing a big event for the Cystic Fibrosis Foundation.
Jim RobertsGUEST
a pretty lot of stuff for it's small there's like 25 people on it my wife runs it and she's phenomenal and that's her passion because she grew up kind of like me and we're doing great things in our community and behind the scenes it's not big publicity thing but we're just you know we just made you know 50 60 blankets and got them down to the homeless people and stuff like that just you know little things big things everything in between
Jim IngersollHOST
Oh, my gosh.
Beth BurkeGUEST
But there is precedent.
Beth BurkeGUEST
I mean, starting with the Cystic Fibrosis Association, which we now know that they became venture philanthropists.
Beth BurkeGUEST
And that's how they funded research project after research project and have made just miraculous advancements.
Jake BurkeGUEST
I mean, there's a cure for cystic fibrosis for a small percentage of that population that it's a cure, right? It's small, but it's a start.
Elke de WachterGUEST
That's true.
Elke de WachterGUEST
The twinning project was set up by the ECFS and it was a joint project with CFF, with the Cystic Fibrosis Foundation.
Elke de WachterGUEST
So there is support from America to continue this project, to start it up and then continue it.
Elke de WachterGUEST
So we applied for the first session.
Mohamed ImamHOST
And families were watching this decline in real time, which really sets the stage for what happened in the year 2000.
Mohamed ImamHOST
The Cystic Fibrosis Foundation, an advocacy organization funded largely by the parents and families of children suffering from the disease, made a monumental, almost reckless commitment.
speaker_1HOST
Reckless is one word for it.
speaker_1HOST
Yeah.
speaker_1HOST
that's billion with a B.
Mohamed ImamHOST
And their market capitalization exploded from around $8 billion in 2012 to over $110 billion by early 2025.
speaker_1HOST
And we cannot forget the Cystic Fibrosis Foundation's return on their initial bet.
speaker_1HOST
This is crucial for healthcare leaders to grasp.
Gordon KeithHOST
All right, and so how can people get tickets and information on this, Rhett?
Rhett MillerGUEST
Breathe Easy Concert Series, Cystic Fibrosis Foundation in North Texas.
Rhett MillerGUEST
I don't know.
Rhett MillerGUEST
Google it.
Chris GarabedianHOST
And I think before you'd see a lot of these, um, and I, yeah, I worked at, uh, CEO Sarepta.
Chris GarabedianHOST
So do Shannon rare disease, a lot of these organizations, they would focus on finding a cure and donating for basic research, um, But it was Kathy and others like the CF Foundation, others said, no, we need drugs like we need to invest to help them get over that valley of death, to get something really translated, translated to something that will work in patients.
Chris GarabedianHOST
And she that was a mandate for her.
Chris GarabedianHOST
And I think she started with like, you know, zero to like 20 drugs in a short period of time.
Courtney DagherGUEST
I happened to be really involved with, um, the Harvard kind of graduating class committee and all of that, so I ended up getting a job, 'cause I didn't know what I was going to do, through that connection.
Courtney DagherGUEST
I moved to DC, and I started at the Cystic Fibrosis Foundation in the nonprofit space.
Courtney DagherGUEST
And for anybody out there who's at that stage of life of, like, either trying to start something new or you're graduating, you don't know what you wanna do, it's totally okay.
Courtney DagherGUEST
For me, I said, you know what? I'm gonna take a big swing, go somewhere new, try something new.
Michele SagarinoGUEST
And so I, um, I looked for a job and, uh, in a newspaper.
Michele SagarinoGUEST
I, I remember it was, like, paying nothing, and um, but I wanted it with all my heart, and it was helping with the Cystic Fibrosis Foundation.
Michele SagarinoGUEST
And so, uh, finally I convinced them that I could do the job.
Michele SagarinoGUEST
I kept knocking on their door, knocking on their door, and I, um, I was able and blessed to, to learn a little bit about what children with cystic fibrosis suffer through, to be a part of some of their, uh, exciting times when research was breaking through.
Heather Griffith BarberGUEST
I'm saying work your network.
Heather Griffith BarberGUEST
So perhaps you see that they are the chair of the Cystic Fibrosis Foundation.
Heather Griffith BarberGUEST
Maybe volunteer on that chair, on that committee.
Heather Griffith BarberGUEST
Maybe make a donation.
8 more episodes mention Cystic Fibrosis Foundation.
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