chronic inflammatory demyelinating polyradiculoneuropathy

This season, we're exploring the road forward and how hope, progress, and connection can light the way.

As we continue to hear stories from people living with MG, CIDP, and myositis, we'll also continue to open the conversation to people living with other autoimmune diseases, including the caregivers who support them.

We'll discuss the many ways people move forward, inspired by the strength and the support of the community.

But most of all, we'll explore the many forms progress can take, seeing how advancements can change lives, finding strength in connection, discovering a new purpose.

Any door, the right support.

In the next Rare Well Done, the Thrive Team helps two people with CIDP tackle the tricky issue of friendship.

Hello.

They say the quiet part out loud.

In the event my CIDP worsens, my friends might decide it's too much.

Get nudged outside their comfort zone.

I don't know if I want to.

In the next Rare Well Done, the Thrive Team helps two people with CIDP tackle the tricky issue of friendship.

They say the quiet part out loud.

In the event my CIDP worsens, my friends might decide it's too much.

Get nudged outside their comfort zone.

I don't know if I want to.

Michael Klim's story is extraordinary, but the chapter he is living now is even much more powerful.

After being diagnosed with CIDP, a rare autoimmune neurological disorder, Michael has had to rebuild his life literally from the ground up.

This is a conversation about courage, identity, family, and what it means to start again, and to be honest, it's a hugely emotional discussion between two blokes who've shared a lot of history together.

Mate, whereabouts are you in beautiful Bali today, Klimmy?

Good

... been for quite some time.

And for the listeners that haven't, um, really heard much about my, my condition, I've got a, an autoimmune condition called CIDP, which is a very rare autonot-- uh, autonomic and also a, a neural sort of condition that affects the peripheral nerves.

Um, and I've had that for over six years.

In the next Rare Well Done, the Thrive Team helps two people with CIDP tackle the tricky issue of friendship.

They say the quiet part out loud.

In the event my CIDP worsens, my friends might decide it's too much.

Get nudged outside their comfort zone.

I don't know if I want to.

So the alternative diagnosis that's been proposed is that he actually had Guillain-Barre syndrome, aka acute inflammatory demyelinating polyneuropathy, or AIDP.

The 2003 paper doesn't specifically mention sort of the chronic form of Guillain-Barre, but I think essentially what they're arguing for is that he settled into what we would call CIDP, or chronic inflammatory demyelinating polyneuropathy.

Only a fraction of Guillain-Barre patients get CIDP, but I think just the chronicity of it, if he did have Guillain-Barre as his inciting illness, then CIDP would sort of be his ultimate diagnosis.

Okay.

And so the next question would be, if the clinical features didn't match polio, what about them does match Guillain-Barre?

Hey, let's bring it on the show.

So yeah, it's pretty cool.

Just really fascinating, right? But yeah, take-home points are based on a modern re-examination of the case history, it seems possible, plausible, perhaps even likely that President Franklin Delano Roosevelt may not have had polio, but rather Guillain-Barre that became chronic inflammatory demyelinating polyneuropathy or CIDP.