Cerebral palsy
DisorderWikipedia
223
MENTIONS
26
EPISODES
23
PODCASTS
Search complete. 223 mentions across 26 episodes found for "Cerebral palsy".
Nov 4, 2026
BrookeHOST
So can you kind of walk me through, Bill, what it was like to get the diagnosis and stuff like that?
Bill WiresGUEST
Oddly enough, September the 11th, 2001, the day everybody else in the world remembers the attack on the World Trade Centers, we received the diagnosis that Logan had cerebral palsy.
Bill WiresGUEST
And I remember his mother called me at work, and she had been to the doctor with him, and she called me at work, and she told me what the diagnosis was.
Bill WiresGUEST
And I remember hanging up, and I just found a spot by myself, and honestly, I just cried.
Logan WiresGUEST
I never really considered myself disabled.
Logan WiresGUEST
And so it was obvious, especially through school and different things, that I had a lot of challenges.
Logan WiresGUEST
But I didn't really know until I was older that, hey, the reason that you had some of those challenges was was because you had cerebral palsy.
Logan WiresGUEST
I didn't realize that.
Win CharlesHOST
They're coming out here tomorrow morning to drop off more equipment and then they're going to build an estimate for me and we'll take it from there.
Win CharlesHOST
I've also contacted a contractor who did an ADA accessible bathroom for my next door neighbor, two doors down from me, who also has CP and cerebral palsy.
Win CharlesHOST
So I just say CP and cerebral palsy.
Win CharlesHOST
CP meaning cerebral palsy.
Win CharlesHOST
There we go.
Win CharlesHOST
Speak much when you don't, apparently.
Daryl PerryHOST
Welcome to Living with Mild Cerebral Palsy.
Daryl PerryHOST
I'm your host, Daryl Perry, and we're going to talk about fatigue.
Daryl PerryHOST
I actually, I wish somebody would have mentioned this to me because for a very long time, I would feel exhausted throughout the day and feel very guilty about it.
Daryl PerryHOST
And part of that is trying to take care of myself.
Daryl PerryHOST
so you know hopefully with you know whatever your thoughts are around fatigue i i always think it's good for you guys to like jot a couple of things down um you can tell when i talk about things like i'm not i don't go into i i want to give you enough detail so that like you're like oh yeah this guy gets it or like if you disagree with me you can at least see like where i'm coming from but it's not even about that like it's a but it's it's about like what is your experience with this? Because again, I, and I know I've, I talk about this regularly.
Daryl PerryHOST
Like I wish I had more information as I was growing up and as a young adult, and even as like an adult into my thirties around what life with cerebral palsy was like and, and mild cerebral palsy.
Daryl PerryHOST
And, you know, I, I think I, And I try to do this from a very optimistic point of view.
Daryl PerryHOST
And, you know, when Chad and I do the cerebral palsy perspective, we're trying to show this stuff from a very optimistic point of view as well.
Thijs JanssenGUEST
And by chance, I just discovered on PubMed studies about shockwave therapy in CP, cerebral palsy, and in stroke.
Thijs JanssenGUEST
So I was really fascinated at the time, hey, is there a new indication for shockwave therapy? And the doctors were very skeptical over there.
Thijs JanssenGUEST
They were like, what are you doing? It's not in the guideline.
Thijs JanssenGUEST
And when I first worked in a private practice, which is the first line of care, The holy grail if you're a physiotherapist would be working in a rehabilitation center because you can see very interesting patients and very complex cases also.
Thijs JanssenGUEST
So I went over to a rehabilitation center and when I wanted to leave my private practice at the time, I wanted to provide an overview about shockwave therapy because I use shockwave therapy for tendinopathy a lot over there.
Thijs JanssenGUEST
And by chance, I just discovered on PubMed studies about shockwave therapy in CP, cerebral palsy, and in stroke.
Thijs JanssenGUEST
So I was really fascinated at the time, hey, is there a new indication for shockwave therapy? I never knew about the option, especially for this group.
Thijs JanssenGUEST
And that was at the same time I had to do my master thesis, the research you have to do to finish your master program.
Sarah SimkoGUEST
Sweet Sammy who we kind of going on sweet.
Sarah SimkoGUEST
So Sam has quadriplegic CP.
Sarah SimkoGUEST
So we didn't really
DallasHOST
touch all of that.
Sarah SimkoGUEST
I love caring for people.
Sarah SimkoGUEST
Um, Samuel is a huge, huge gift to us.
Sarah SimkoGUEST
He's got quadriplegic CP due to that grade four brain bleed.
Sarah SimkoGUEST
So he's got good, when I say good function, maybe like 70% function of his left hand, but right hand is typically kind of more fisted and he cannot sit, cannot crawl.
Tom GarrodGUEST
So, it then affects your speech, walking, and formal coordination.
Tom GarrodGUEST
So, that's why you get people with cerebral palsy, even wheelchair users or paraplegic, and you get people who, you know, their cerebral palsy will affect one arm.
Tom GarrodGUEST
You know, for instance, I'm kind of somewhere in the middle where, you know, obviously you can hear my speech is affected.
Tom GarrodGUEST
My walking gait is strange and I suffer.
Tom GarrodGUEST
My final coordination is fixed that much.
Lois StrachanHOST
Thank you for the description.
Lois StrachanHOST
I think it's useful for people to understand because, as you say, cerebral palsy as a condition, it shows in so many different ways and everyone is different.
Lois StrachanHOST
So I really appreciated that you took us through a little bit of that kind of experience more generally and then specifically what it looks like in your case.
SeanHOST
Williams Syndrome, yeah, he's got one.
SeanHOST
Hurler Syndrome, Hunter Syndrome, Autism Spectrum Disorder, Prader-Willi Syndrome, and Cerebral Palsy, to name a few.
SeanHOST
Yeah, so that's interesting.
SeanHOST
So
Michele AlanizHOST
If you're anything like me, you are mystified about what you should be doing with your kids with CP, especially the ones that are maybe more involved and have less movement.
Michele AlanizHOST
In today's episode, we're gonna give you the rundown on all of the evidence on postural control interventions for kids with CP.
Michele AlanizHOST
You don't wanna miss this one.
Michele AlanizHOST
[upbeat music] Welcome to Ideas at Play, where we discuss pediatric research and help you apply the ideas to your daily practice.
Lacy WrightHOST
We're pedes OTs who love research and making it fun.
Lacy WrightHOST
We've helped thousands of therapists just like you to become more informed, more playful, and more effective in their sessions.
Lacy WrightHOST
This week, we'll be talking about postural interventions with CP.
Lacy WrightHOST
But first, our favorite segment, Nailed It or Failed It.
Daryl PerryHOST
Welcome to Living With Mild Cerebral Palsy.
Daryl PerryHOST
I'm your host Daryl Perry of Your Level Fitness, and I, I said this when recording yesterday's podcast, and I feel like [laughs] it's the underlying thing.
Daryl PerryHOST
I'm just trying to navigate the world, and I feel like you probably feel much the same way.
Daryl PerryHOST
Like, basically like, "Here's the hand you're dealt.
Daryl PerryHOST
What are you gonna do with it?" Right? [laughs] Like, what are you gonna do with it? Um, w- we're just all trying to navigate it, right? And I'm, I'm telling you, like, for any of you that wanna share your thoughts, opinions, and experiences, I encourage you to do it.
Daryl PerryHOST
I've been, I've been putting a lot more stuff out about my cerebral palsy on social media, the, the stiffness and the, the just the general mobility challenges, the mobility victories, being able to get X amount of steps a day, bragging about all this stuff.
Daryl PerryHOST
Because I, I, I feel good about it.
Daryl PerryHOST
For a long time, I felt like I didn't wanna share it.
Luke Felix RoseSOUNDBITE_SPEAKER
Neoconservatism is fear, and democratic socialism is hope.
Thatcher Warrick-EssHOST
Tucsonan John Sullivan is representing Team USA at the Cerebral Palsy World Cup this week.
John SullivanSOUNDBITE_SPEAKER
I think of all the little kids with CP who might be watching me.
Gabe StultzHOST
And private micro-schools, funded by the controversial state voucher program, are opening doors for children with disabilities whose needs aren't being met in traditional education systems.
19 MINS LATER
Thatcher Warrick-EssHOST
But there are still other ways to take part, like an object swap community club through the Office of Collecting and Design's website.
Thatcher Warrick-EssHOST
The Office of Collecting and Design will be parked behind the Tucson Museum of Art through today, October 18th.
Gabe StultzHOST
Now from Tucson art to Tucson sports, Tucsonan John Sullivan is representing Team USA at the Cerebral Palsy World Cup this week.
Gabe StultzHOST
Sullivan is a forward on the U.S. Cerebral Palsy men's national soccer team.
16 more episodes mention Cerebral palsy.
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