catecholaminergic polymorphic ventricular tachycardia

That's why three of us patient advocates have joined forces.

Lorraine, who lost many family members to the rare channelopathy CPVT.

Esther, who lost her son, Angel, to the rare cardiomyopathy ARVC, or better ACM, arrhythmogenic cardiomyopathy, at age fifteen.

And I, who lost my daughter, Judith, to ARVC at age fourteen, and two years later, my niece at age twenty-three.